Jan 28, 2020
YouTubers Simon and Martina Stawski share many aspects of their lives with their audience, including how they approach Martina’s diagnosis of Ehlers-Danlos syndrome (EDS). On today’s episode, I talk with Simon and Martina about how honest conversation plays a huge role in their team effort to manage EDS. We also...
Jan 21, 2020
As deputy editor at Health.com, Esther Crain has developed features that reflect the hidden health experiences of people today. Focusing on women who have been misdiagnosed or diagnosed with invisible illnesses, she looks for stories that are relatable and help shine a light on different conditions and experiences with...
Jan 14, 2020
For the first few months after she was diagnosed with multiple sclerosis, Jessie Ace felt like her life was over. But, as she learned how to advocate for herself as a patient and reframe her mindset, her experience changed. On today’s episode, Jessie and I talk about what it was like to be diagnosed at age 22 and how...
Jan 7, 2020
Lara Parker deals with vagina problems (which is also the title of her book, coming in 2020). On today’s episode, Lara I talk about why she started being upfront and open about how endometriosis and other conditions have affected her life, and why she feels a responsibility to tell her story. Whether she’s talking...