Feb 18, 2020
Before being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn’t uncommon. On today’s episode, Lara and I talk about why she’s dedicated her career to EDS awareness, why it’s important to her that The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS.
Learn more about Lara and check out the show notes here.
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